Slowly slowly forward

Max’s eyes have improved over the past three years. Slowly yet stadily. His vision is now, on average, 20/200, meaning 10%. Dr. Zaal and Visser Contactlenzen have done a great job over the past years. Max is grateful. Max has started making YouTube videos. To see his first video on SJS, you watch by this link.

Improvement for both eyes?

Last tuesday (December 19th, 2017) Max has undergone surgery at VUmc in Amsterdam. This time, Max’s both eyes were operated. In the left eye, again membrane of the mouth was implemented to further enhance the condition of the eye. In the right eye, a hydrophobic part of the epithelium was corrected. Recovery since the surgery is going well. The pain that Max feels is less than expected.  The mouth heals quickly, just like after transplantations of membrane of the mouth … Read More

Small surgery

Last Thursday, Max underwent surgery to his left eye. Surgery took place in Zaandam and took 1,5 hour. The aim of this surgery was to further improve the condition of the eye. Old stitches were removed. Surplus membrane of the mouth was removed and placed to the most hydrophobic parts of the eye. The days after, Max’s left eye hurt. The eye got inflamed after surgery. This was because of the dry parts being irritated by the surgery. Now, slowly the … Read More

Surgery has succeeded

Surgery of January 17th 2017 has succeeded. Two big portions of membrane of the mouth were transplanted into the upper and lower side of Max’s left eye. A bandage of amnion (stamcell tissue) was placed on the eye, which was held in its place by a small ring, placed on the cornea. For a few days, the eye was held closed by stitches through  the eye lids. This was to keep the eye moist and protected. Workout again Two days … Read More

New surgery for left eye

The past months, Max vision has stabilized to a 7-8%. Cortico steroids and antibiotics usage was reduced to once per day. This is a good thing, since this has significantly reduced the chance of negative side effects. Max has almost no pains or irritations in his right eye, now his good eye. His left eye has a vision of 0,5% still. The conjunctiva are often swollen and irritated. The eye is more red and more often inflamed than his right … Read More

August 2016, another year passed by

One year has passed since the first cornea transplantation combined with membrane of the mouth has taken place. In total, Max has undergone 5 interventions, of which 3 were transplantations of membrane of the mouth. In july the last transplantation of membrane of the mouth has taken place. This time the tissue was placed on the weakest spot on Max’s right eye cornea to protect it against dryness and external factors. The condition of the eye has improved. The hydrophobic … Read More

Spring 2016 Update

Vascularisation in Max’s right eye has ceased and has retreated. The new membrane of the mouth has correctly been integrated into the eye. Vision has improved yet again, although it still fluctuates. This is mainly because of the bandage contact lens drying out quickly. This requires frequent replacement. Half march, a first intervention has taken place. This was to remove bad hydrophobic epithelial cells. Initially the eye became irritated, but this disappeared within one week. The epithelium healed within 2 … Read More

December 2015 Surgery succeeded

Surgery of December 1th 2015 succeeded. Big portions of membrane of the mouth were successfully transplanted into the above conjunctiva of Max’s right eye. Although surgery was successful, it had much more impact than Max had expected. It lasted 3 instead of 1 hours. The tissue was implemented using stitches through the eyelids and knots and tube to hold everything in place. This disabled Max from closing his eye fully, whilst he could not open it either. This caused much … Read More

Growth epithelium has completed

Growth of the epithelium has completed. The corneal defect has disappeared. Max is quite relieved. Since the end of august Max has been wearing a bandage contact lens in the right eye. This is to protect the epithelium and to improve its growth. The lens was rejected every night. Fortunately, Max could go to the specialists of Visser Contactlenzen literally every day. It is because of their fantastic care and monitoring that Max could retain his inner peace and could facilitate the … Read More

Surgery done on July 9th has succeeded!

Surgery done on July 9th has succeeded. On the one hand, membrane of the mouth was transplanted into the conjunctiva of the right eye. The mouth quickly healed.  What is more is that the membrane of the mouth is entirely accepted by the conjunctiva. The eye retains moisture better. This makes using eyedrops to have use. Thereby, the condition of the eye has greatly improved. On the other hand, a partial transplantation of the cornea has taken place. Around 70% of … Read More

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